WEB PAGES OF INTEREST FOR PEOPLE WITH AUTISM, THEIR FAMILIES AND SUPPORTERS

   

 

Updated 15th September, 2002

Charter of Rights for people with autism

At least 1 million citizens within the EU are affected by Autism. People with Autism can have impairments in communication, social contact and emotions which can affect all senses including touch, smell and sight. People with autism should share the same rights and privileges enjoyed by all of the European population where such are appropriate and in the best interests of the person with autism.

These rights should be enhanced, protected, and enforced by appropriate legislation in each state.

The United Nations declaration on the Rights of Mentally Retarded Persons (1971) and the Rights of Handicapped Persons (1975) and other relevant declarations on Human rights should be considered and in particular, for people with autism the following should be included:

Presented at the 4th Autism-Europe Congress, Den Haag, May 10th, 1992.

1. THE RIGHT of people with autism to live independent and full lives to the limit of their potential;

2. THE RIGHT of people with autism to an accessible, unbiased and accurate clinical diagnosis and assessment;

3. THE RIGHT of people with autism to accessible and appropriate education;

4. THE RIGHT of people with autism (and their representatives) to be involved in all decisions affecting their future; the wishes of the individual must be, as far as possible, ascertained and respected;

5. THE RIGHT of people with autism to accessible and suitable housing;

6. THE RIGHT of people with autism to the equipment, assistance and support services necessary to live a fully productive life with dignity and independence;

7. THE RIGHT of people with autism to an income or wage sufficient to provide adequate food, clothing, accommodation and the other necessities of life;

8. THE RIGHT of people with autism to participate, as far as possible, in the development and management of services provided for their wellbeing;

9. THE RIGHT of people with autism to appropriate counselling and care for their physical, mental and spiritual health; this includes the provision of appropriate treatment and medication administered in the best interest of the individual with all protective measures taken;

10. THE RIGHT of people with autism to meaningful employment and vocational training without discrimination or stereotype; training and employment should have regard to the ability and choice of the individual;

11. THE RIGHT of people with autism to accessible transport and freedom of movement;

12. THE RIGHT of people with autism to participate in and benefit from culture, entertainment, recreation and sport;

13. THE RIGHT of people with autism of equal access to and use of all facilities, services and activities in the community;

14. THE RIGHT of people with autism to sexual and other relationships, including marriage, without exploitation or coercion;

15. THE RIGHT of people with autism (and their representatives) to legal representation and assistance and to the full protection of all legal rights;

16. THE RIGHT of people with autism to freedom from fear or threat of unwarranted incarceration in psychiatric hospitals or any other restrictive institution;

17. THE RIGHT of people with autism to freedom from abusive physical treatment or neglect;

18. THE RIGHT of people with autism to freedom from pharmacological abuse or misuse;

19. THE RIGHT of access of people with autism (and their representatives) to all information contained in their personal, medical, psychological, psychiatric and educational records. 

This written declaration on the rights of people with Autism was tabled by Mary Banotti, Irish member of the European Parliament, and was adopted by the European Parliament on Thursday May 9th, 1996.

Meeting the Needs of People with Learning Disabilities  Contributed article to Nursing and Residential Care magazine by Dr David Thompson, Programme Manager, Growing Older with Learning Disabilities, The Foundation for People with Learning Disabilities.

June 2001

Learning disability is the term used now for people who were previously labelled mentally handicapped or mentally retarded. People with learning disabilities have both of the following:
A significant intellectual impairment which means they have difficulty understanding or learning things                                            .       
Difficulties with some basic everyday skills like eating, cooking, dressing or handling money.

 

A quote by a father: -

 

“I see part of my remit as campaigning on behalf of young people and adults with
autism who are badly served by existing services. I am angered by the ignorance
of AS within the psychiatric profession, the impetuous use of drugs and the
abuse meted by badly trained staff thinly disguised as restraint.”

 

A fathers web pages 


http://mikestantonautism.blogspot.com/
http://www.autismcomment.blogspot.com/

 

Diana's Personal AspergerPage

Diana is from Germany and her site is in English and German.
http://people.freenet.de/anaid 

Linus Moke’s Webpage

Linus has Asperger’s Syndrome and he writes about his personal struggles in a journal-oriented website.
www.linusmoke.com/siteindex/psych.htm 

George Handley’s Webpage

George has Asperger’s Syndrome and he writes about himself and how he copes with life.
www.webspawner.com/users/asperger

  AS Jungle    

AS Jungle is a discussion group attemptin to bridge the gap between nt's and aspies and start up some form of dialogue.  This Web site is maintained by Jack Savage. 
http://www.delphi.com/asjungle/start

  The Mind Within

Various opinions, experiences, and other writings by an optimist with Asperger Syndrome. 
http://within.autistics.org


Liane Holliday-Willey 

Visit her at:   www.ASPIE.com

David C. Miedzianik

I used several quotations of David's in the book on Asperger's Syndrome and he has a web address:  http://freespace.virgin.net/david.mied/index.htm .

This is an excellent site for peer support, forums, and self-help strategies.  http://amug.org/~a203/

Dana's View from the Inside    

 http://www.autismchannel.net/dana/

Donna Williams' Homepage:-
http://www.donna.inuk.com/

 

 Wendy Lawson’s home patient

  http://www.mugsy.org/wendy/index2.htm

 

 

The Story of Daniel Muller

http://www.geocities.com/dansweb2000/#biography

 

Eric's autism website
http://www.freehomepages.com/autistic/

 

Boone is a 4 year old who draws events before they happen

http://home.isoa.net/~nitetrax/bart.htm.

 

 Bens page

http://www.asperger-syndrome.com/

 

I call our site SAFE CHILD because that is what my son now is. I am just a mother who learned about forced psychiatric drugging the hard way

http://www.safechild.faithweb.com/ 

 

Welcome to the daily school journal of my 7 year old son Wesley

http://autfriends.autistics.org/wesley/index.html 

 

Jenelle's Story 

http://www.antipsychiatry.org/jenelle.htm 

AspergerArtforms

 

http://www.angelfire.com/in/AspergerArtforms/

http://www.angelfire.com/in/AspergerArtforms/besthelp.html 

 

Homepage of Timo Järvilehto

http://wwwedu.oulu.fi/homepage/tjarvile/indexe.htm

 

BBC TV documentary

 

http://news.bbc.co.uk/media/video/38145000/rm/_38145074_newsnight18_autistic_vi.ram    

Entry site to approximately 500 groups

http://dir.groups.yahoo.com/dir/Health___Wellness/Support/Illnesses/Autism

 

Autism and Vaccination   A paper by Paul Shattock Et Al  http://osiris.sunderland.ac.uk/autism/vaccine.htm

 

Autism Research Unit, Sunderland     http://osiris.sunderland.ac.uk/autism/index.html

 

Autism Related Websites     http://osiris.sunderland.ac.uk/autism/sites.htm

 

http://www.patientcenters.com/autism/  

 

Autism: Online Resource Guide      Want to learn more about autism symptoms, diagnosis, and treatment? Here are online resources that have been carefully evaluated for Parents.com by a team of academic professionals from Tufts University in Medford, MA.

http://www.parents.com/articles/health/5034.jsp    

 

 Division TEACCH - Treatment and Education of Autistic and related Communication handicapped Children
www.teacch.com

http://www.nids.net/

 

Allergy induced Autism   http://www.autismmedical.com/

 

ANCA Foundation

http://www.naturallyautistic.com/ 

 

Scottish Society for Autism

http://www.autism-in-scotland.org.uk/

 

Irish Society for Autism

http://www.iol.ie/~isa1/

 

NAS/Surrey AS home Page   http://www.mugsy.org/index.shtml   

 

Northamptonshire Society for Autism   http://www.northants-soc-for-autism.org.uk/    

 

The National Autistic Society website is www.nas.org.uk

 

 The National Alliance for Autism Research (NAAR)    

 

Families of Adults Afflicted with Asperger's Syndrome   http://www.faaas.org/links.html

 

Hope TLC

http://hope-tlc.autistics.org/about.html 

Kind Tree Productions, Inc

http://www.kindtree.org/ 

 

http://www.autistics.org/

 

The autism awareness 2002 website is       www.autism-awareness.org.uk

 

http://theage.com.au/news/state/2001/10/14/FFX4SV7BQSC.html

 

http://www.strathclyde-autistic-society.org.uk/

http://www.learningdisabilities.org.uk/

http://www.autismcymru.co.uk/

 

Good Autism Practice Journal   http://www.corelearning.co.uk/gap/index.asp

AUTISM UPDATE: In Brief An alternative view of autism—its epidemiology, causes and treatment—was presented at Autism 2001

http://www.medicalpost.com/mdlink/english/members/medpost/data/3718/21A.HTM 

 Advocacy Kit Page

http://www.mhca.com.au/cdp/index.htm 

Community Zero the Autism Chiari Link.  Membership is free. The link to this site is  http://www.communityzero.com/autismchiari

 At community zero there is also a affiliate group "Our Chiari Kids" which offers support to families of children diagnosed with this condition.

http://www.communityzero.com/ock

Support for family with Autism http://www.communityzero.com/autismfriends

Duke Geneticists Unraveling the  Tangled Web of Autism
Author: Renee Twombly

 http://news.mc.duke.edu/newsrel/pagemaker.cgi?1DUN 0990.txt

Autism and Chiari Type 1 Malformations  
Author: Wolpert, Enteline, Cuccaro, Donnelly, Ravan, Abramson, Wright, Speer, Vance
http://parkinson.duke.edu/research/chiari.html 

http://www.geocities.com/keggy11789/chiari_survey.htm 

Autism's more helpful and most unusual website called "Ooops....Wrong Planet! Syndrome",  at www.PlanetAutism.com, 

 

My experience with Visual Thinking Sensory Problems and Communication Difficulties"

http://www.autism.org/temple/visual.html
"

Brain Talk Page references

Sleep

http://neuro-mancer.mgh.harvard.edu/ubb/Forum9/HTML/004367.html 

daytime sleepiness. ...."
http://www.saintjosephdenver.org/care/services/sleeplabs/limb/

The movements are said to occur mainly in non–rapid eye movement (REM) sleep. ...."
http://www.emedicine.com/neuro/topic523.htm

http://www.rlshelp.org/rlscomp36.htm

Mirapex for OCD. http://neuro-mancer.mgh.harvard.edu/ubb/Forum68/HTML/000958.html

zdmom@earthlink.net

information about medications that have been used for PLMD.
http://www.rls.org/frames/home_frame.htm (click on "Medical Bulletin" in the menu on the left side of the screen).

http://www.aasmnet.org/PDF/RLSReview.pdf

IEP info

http://www.add.org/content/school/list.htm

http://neuro-mancer.mgh.harvard.edu/ubb/Forum9/HTML/005035.html 

NeoGen screening, have you seen this link?

http://www.nucdf.org/nbs.htm

Update on the Autism Epidemic and Vaccines  Opening Statement Chairman Dan Burton  Committee on Government Reform  The Status of Research into Vaccine Safety and Autism

http://www.mercola.com/2002/jul/6/autism.htm

Testimony of Dr Andrew J Wakefield MB MS FRCS FRCPath
Committee on Government Reform June 2002 http://www.house.gov/reform/hearings/healthcare/02.06.19/index.htm

and

http://neuro-mancer.mgh.harvard.edu/ubb/Forum9/HTML/004972.html 

Testimony before Congressional Oversight Committee on Autism and Immunization
by Arthur Krigsman MD

and

http://neuro-mancer.mgh.harvard.edu/ubb/Forum9/HTML/005044.html 

http://www.house.gov/reform/healthcareissues.htm

THE AUTISM EPIDEMIC--IS THE NIH AND CDC RESPONSE ADEQUATE

http://frwebgate.access.gpo.gov/cgi-bin/getdoc.cgi?dbname=107_house_hearings&docid=f:80356.wais 

Autistic Girl's Urge To Explore Put Her In Harm's Way
http://click.topica.com/maaaqvOaaSF7Fa4JiZNb/

http://neuro-mancer.mgh.harvard.edu/ubb/Forum9/HTML/004367-2.html  Tonsils is not the main topic, but it does touch on the subject,

http://neuro-mancer.mgh.harvard.edu/ubb/Forum9/HTML/003199.html

Akathisia

http://bmj.com/cgi/content/full/324/7352/1506 

Centre For Complex Infectious Diseases

http://www.ccid.org/index.htm 

http://groups.msn.com/TheMirandaMissionHumanParvoVirus

The website for Cyproheptadine is:-
http://fb.a-files.net/Packagelnsert/52402400.htm

The article that recommends Cyproheptadine for akathisia is:-
"Akathisia - a Brief Review" by Dr.D.E.Nelson, Oct. 2001, from the Scottish Medical Journal.
http://www.smj.org.uk/1001/aka1001.htm

http://neuro-mancer.mgh.harvard.edu/ubb/Forum9/HTML/002336.html In it, Laura, Janette, Tired, & Twins+1 all said that their kids got a lot of benefit from OT.

 

Prescribing without seeing patient

http://www.psych.org/pnews/00-05-05/kaiser.html

 

 

The Center for Mental Health Services Knowledge Exchange Networkhttp://www.mentalhealth.org/

 

Drug side effects  http://www.socialaudit.org.uk

 

Birmingham School of Education. They run the courses for people serious about autism and have been at it longest.  The website is also easily located on the net.   .Contact Rita Jordan R.R.Jordan@bham.ac.uk         

Courses information http://www.edu.bham.ac.uk/CPD/campus/autism.html#prog

                                   www.autism.bham.ac.uk

http://www.autismconnect.co.uk/

BMJ home page http://bmj.com/cgi/collection/pharmacology_and_toxicology

MRC Review paper http://bmj.com/cgi/content/full/324/7328/10/b

MRC site  http://www.mrc.ac.uk/index/public_interest/topical_issues/autism_review.htm

 

A  website about recruitment for drug trials:-    http://www.clinicaltrials.gov/

 

The following website has some interesting book titles and summaries:-

"Health, Healing, Childbirth and Medical Controversies"

http://www.orgonelab.org/xhealth.htm

 

News Groups on all medical conditions

http://neuro-mancer.mgh.harvard.edu/cgi-bin/Ultimate.cgi?action=intro&BypassCookie=true

 

Specific Autism site 

http://neuro-mancer.mgh.harvard.edu/cgi-bin/forumdisplay.cgi?action=topics&forum=Autism&number=9&DaysPrune=365&LastLogin=

 

CCHR(UK) site    www.cchr.org

 

Disclose  the Truth is:-
http://groups.yahoo.com/group/DiscloseTheTruth

 

There is an informational resource for parents of ADHD, Autistic and
> Cerebral Palsy children at
> http://www.healing-arts.org/children/

 

http://www.tourettesyndrome.net.common_tics.htm

 

www.preventcancer.com

 

http://www.autisimmanagement.com/

 

Adverse Psychiatric Reactions Information Link   www.april.org.uk

 

Autistic Persons Against Neuroleptic Abuse   www.apana.supanet.com

 

http://policeandautism.cjb.net

 

 ="http://www.mercola.com/2001/jun/13/autism_mercury.htm">Autism 'Linked to Mercury Vaccine'</A>
> <A HREF="http://www.mercola.com/1999/sep/12/thimerosal.htm">CDC Issues Recommendations On Use Of Thimerosal - Mercury- Free Hepatitis B
> Vaccine</A>
> <A HREF="http://www.mercola.com/2001/feb/24/autism_mercury.htm">Autism and Mercury</A>
> <A HREF="http://www.mercola.com/2001/mar/7/vaccine_ingredients.htm">Vaccine Fillers and Ingredients</A>

 

http://www.mercola.com/2001/oct/10/mercury_vaccines.htm

 

http://www.mercola.com/1999/jun/13/ultrasound_may_harm_unborn.htm

 

http://www.nicholasregush.com/

 

http://www.europa.eu.int/yourvoice/index_en.htm

 

Newspaper link www.thepaperboy.co.uk

 

For directions   http://www.multimaps.com/

 

http://osumedcenter.edu/whats_new/press_releases/press_releases_display.asp?id=490

 

Adverse Psychological Effects of ECT

http://neuro-www.mgh.harvard.edu/forum_2/LightningandShockF/3.2.991.12AMAdversePsycho.html

 

Asperger Syndrome Webring   http://www.webspawner.com/users/asperger/

 

The International Forum for Psychiatry  http://www.priory.com/psych.htm

 

Green MedicoLegal  http://www.greenmedicolegal.com/medicolegal/poll.shtml

 

Health Research Institute  http://www.hriptc.org/RESErxxx.htm

 

The Mental Health and Learning Disabilities Portal   http://www.connects.org.uk/

 

Centre for the Study of Psychiatry and Psychology  http://www.breggin.com/

 

Psychiatryonline  http://www.priory.com/psycont.htm

 

The Mental Health Foundation  http://www.mentalhealth.org.uk/

 

Drug encyclopaedia   http://www.rxlist.com/

 

The Scottish Parliament   http://www.scottish.parliament.uk/

 

List of Vaccines Containing Thimerosal  http://autismawakeninginia.bizland.com/autismthevaccineconnectionandrelatedstories/id13.html

 

The autism-uk list where parents, professionals, representatives of the NAS and, most importantly, adults with autism make their views known

http://www.autism-uk.ed.ac.uk/

 

A news group alt.support.autism

 

Community Care and Health (Scotland)
Bill
http://www.scottish.parliament.uk/parl_bus/bills/b34s1.pdf
<http://www.scottish.parliament.uk/parl_bus/bills/b34s1.pdf>

 

UN Declaration on the right of mentally retarded persons
http://www.unhchr.ch/html/menu3/b/m_mental.htm
<http://www.unhchr.ch/html/menu3/b/m_mental.htm>


The Standard Rules on the Equalization of Opportunities for Persons with
Disabilities
http://www.un.org/esa/socdev/enable/dissre00.htm
<http://www.un.org/esa/socdev/enable/dissre00.htm>


Code of Good Practice on Prevention of Violence Against Persons with Autism
http://www.autismeurope.arc.be/english/code.htm
<http://www.autismeurope.arc.be/english/code.htm>

Charter of Rights of persons with autism
http://www.autismeurope.arc.be/english/charter.htm
<http://www.autismeurope.arc.be/english/charter.htm>

Written Declaration On The Rights Of People With Autism
http://osiris.sunderland.ac.uk/autism/eucharter.html
<http://osiris.sunderland.ac.uk/autism/eucharter.html>


Adults with Incapacity (Scotland) Act is not a UK Act but a Scottish
Parliament one
http://www.scottish.parliament.uk/parl_bus/bill-final.htm#5
<http://www.scottish.parliament.uk/parl_bus/bill-final.htm#5>

Spice (Scottish Parliament Information Centre) have produced a research note on the subject
http://intranet/speir/pdf/Research%20Material/Research%20Papers/0003%20Adult
s%20with%20Incapacity%20(Scotland)%20Bill%20(as%20amended%20at%20Stage%202).
pdf
http://intranet/speir/pdf/Research%20Material/Research%20Papers/0003%20Adul
ts%20with%20Incapacity%20(Scotland)%20Bill%20(as%20amended%20at%20Stage%202)
..pdf

 

ACN provides cutting-edge information on advanced, alternative, and complementary approaches to -

http://www.latitudes.org/ 

http://www.latitudes.org/autism_articles.htm 

 

Comprehensive Behavioural Support

http://www.nu-world.com/~jls/index.html 

"Medicine Today".  To get a free copy of the mag. fill out a request form on the website
 www.medicine-today.co.uk

 

RESCARE is a registered Charity and the object for which the Society is established is to promote the relief and welfare of mentally handicapped people in all types of residential care establishments. It especially aims to represent the views of all parents and relatives, including those doing the caring in the family home. It was founded in 1984. 

http://www.rescare.org.uk/thisis.htm

 

Search for hard-to-get facts about medicine and drugs    http://www.wddty.co.uk/

 

Classical Homœopathy, adhering to the standards of the British Register of Complementary Practitioners   http://www.classicalhomoeopathy.org/Frameset.html

 

http://www.wired.com/wired/archive/9.12/aspergers_pr.html
is of great interest re genetic tendencies and what some people are planning
in alliance with the pharmaceutical industry

 

http://www.isn.net/~jypsy/ [Ooops...Wrong Planet! Syndrome - one of the very best and liveliest autism sites in the world, with *the* best links page, made by autistic [AS] mother of autistic children in the sticks in PEI, Canada]


http://www.shifth.mistral.co.uk/autism/ [b


http://users.1st.net/cibra/ [on traumatising "treatments"]

http://justice.autistics.org/ ["The Autism Truth and Justice Commission" - to which we should probably be putting forward some cases....]

 

Link..  Guide to Intestinal Health in Autistic Spectrum Disorder by Kirkman (179 pages) http://www.kirkmanlabs.com/links/Gut_Protocol/Gut_Protocol.pdf

 

www.gfcfdiet.com

 

Yeasts

http://neuro-mancer.mgh.harvard.edu/ubb/Forum9/HTML/003655.html

http://neuro-mancer.mgh.harvard.edu/ubb/Forum9/HTML/003684.html

http://GFCFKids@yahoogroups.com

 

FEAT NEWS on 21st June 2001

"There's a high divorce rate among families with autism.  Here's a list for single parents with family autism.  Don't expect a social director to help you mix.  This is a do-it-yourself project.  What you get out of it is what you put in."

 http://groups.yahoo.com/group/1ParentAut/?yguid=111692278

http://www.feat.org/scripts/wa.exe?S1=featnews          

 

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?CMD=search&DB=PubMed     

 

1ParentAut-subscribe@yahoogroups.com

 

The following are not specifically about autism:-

 

I had written, "re. psych. hospitals, covers abuse, fraud, international policies."

http://www.ect.org/tattler/home.html

 

"The Dark Site of Psychiatry" 

http://www.oikos.org/antipsicen.htm

 

About vaccines   http://www.909shot.com/

 

Diagnostic Criteria for the most common mental disorders including: description, diagnosis, treatment, and research findings

http://www.psychologynet.org/dsm.html

 

http://www.IDEAdata.org/tables/ar_aa2.htm

DSM IV criteria were used for case definition

http://www.marshall.edu/coe/atc/prevalence.html

 

Common medications linked to stroke

www.ivanhoe.com/docs/newsflash/commonmedicationslinkedtostroke.html

 

phenolic foods in his diet

http://home.pacbell.net/cscomp/phenol.htm

 

Hallucinations

http://www.pol-it.org/halluc.htm

Developing novel treatments for psychiatric illnesses and other conditions

http://www.laxdale.co.uk/

 

Schizophrenia web sites

http://neuro-mancer.mgh.harvard.edu/cgi-bin/forumdisplay.cgi?action=topics&forum=Schizophrenia&number=84&DaysPrune=365&LastLogin=

 

http://www.mhsource.com/narsad/pub/nlarchive.html

 

Article from British Medical Journal about authors of medical research papers

 

http://bmj.com/cgi/content/full/324/7334/383/a

 

Here is a yeast and bacteria page, which has links to other information you might find useful.

http://www.autismchannel.net/dana/yeast.htm

E Medicine home page 

http://www.emedicine.com/derm/topic789.htm

in this thread ( http://neuro-mancer.mgh.harvard.edu/ubb/Forum9/HTML/003935.html ) suggest that thyroid and maybe diabetes testing are appropriate for a child with hypercarotenemia (not jaundice).

 http://www.neuroimmunedr.com/index.html

 

The book "Doctors are dangerous"

www.doctorsaredangerous.com 

Autism is a disease not a developmental problem

http://www.neuroimmunedr.com/present3/sld001.htm

 

Lab testing

http://www.greatplainslaboratory.com/home.htm

 

Experimental Diet

http://members.aol.com/lisas156/gfpak.htm

Asperger's Resources Web Page aiming "to provide resources and links to support groups specifically for AS."
 Aspergers & HFA students Pages for students with HFA and Asperger's worldwide.
 Autism Initiatives - Former Liverpool and Lancashire Autistic Society
 Autism Resesearch Unit
Autism Society of America
Autism and Abuse Information on the prevention of sexual abuse of people with developmental disabilities

Association for Behavioural analysis 

http://www2.aba.wmich.edu/ 

Cambridge Centre for Behaviour

http://www.behavior.org/autism/ 

CAN Cure Autism Now!

http://www.cureautismnow.org/  

Computers & Autism Strategies for using computers in teaching

Dave Kelsall's page:- A member of Lancashire and South Cumbria Autistic society and the NAS

FEAT Families for Early Autism Treatment Inc. Check out the FEAT Daily Online Newsletter

Health Education Authority Homepages Information, press releases and links to The Department of Health, UK

Hyperactive Childrens Support Group Information on hyperactivity

Mental Health Net a large & comprehensive guide to mental health online.

MHI Mental Health InfoSource, includes several interactive features and a search engine.

NAS National Autistic Society (UK) - new and improved NAS site (more website links and the NAS Charity card)

On The Same Page: A web site maintained by a group of people with Autism. Forums, email lists, list of web sites, self-help.

PAPA Parents and Professionals and Autism, based in Northern Ireland - affiliated to the NAS.

PEACH Homepage Parents for the Early intervention of Autism in Children

Scottish Society for Autism

SASG:- Somerset Autistic Support Group

SFTA:- Society For the Autistically Handicapped - based in Kettering, Northamptonshire, UK.

Wirral Autistic Society (WAS)

World Internet Directory - Disabilities:- comprehensive set of links, including autism

US National Library of Medicine Database Access to MEDLINE for all your medical research searches

Behavioural Intervention in the UK - Our experience A parents view of behavioural strategies

Delaware Program Homepage

Facilitated Communication Institute

'The House that Jack Built' - Follow Jack on the Son-Rise Programme

Lovaas Programme

Music Therapy An Experimental study on Music Therapy

The Option Institute The Son-Rise Programme

PECS Picture Exchange Communication System

SAIT Auditory Intergration Therapy

Teaching students with AS Useful info on teaching strategies

TEACCH An educational approach

School as a caring community More help for teachers

The Autism File is a quarterly newsletter dealing with all aspects of autism, compiled by Jonathan and Polly Tommey who have an autistic son."
www.autismfile.com

 

Pages from other sites of interest

 

http://www.autismlondon.co.uk/        Autism London - 1 Floral Place, London N1 2FS

http://www.aspergersyndrome.com/        Asperger's Syndrome - a site for Professionals, Educators and Parents

http://www.udel.edu/bkirby/asperger/     O.A.S.I.S - Online Asperger Syndrome Information and Support (Excellent Resource)

 http://www.udel.edu/bkirby/asperger/karen_williams_guidelines.html    O.A.S.I.S - Help in the Classroom - provides really useful information for teachers

www.aspergerssupport.net - Support site by the mother of a young Asperger son

http://www.son-rise.org/     - The Autism Treatment Center of America

     http://www.aspergersyndrome.com/   - shares information about Aspergers Syndrome and Attention Deficit Hyperactivity Disorder from personal experiences.

   http://aspegerssupport.com/ -Kathryn Kagan, M.A., M.S.Ed. Intensive Special Needs Teacher and expressive Therapist located in Belmont, MA

  http://www.autism-in-mind.org.uk/  - UK based Autism awareness website.  

  Cardiff and the Vale Asperger Support Group - No website yet but you can email: aspergers.supportgroup@ntlworld.com

http://www.ashgroveschool.btinternet.co.uk/    Ashgrove School

The first set of links have to do with Autism.
The second half are TD links.  Some of it is very technical, so I don't know if it will be of use. 

http://content.health.msn.com/printing/article/1833.50743

http://content.health.msn.com/printing/article/3204.654 

http://content.health.msn.com/printing/article/1665.53638

http://content.health.msn.com/printing/article/1739.50089

http://content.health.msn.com/printing/article/3734.4676

http://content.health.msn.com/printing/article/1680.51490

http://content.health.msn.com/printing/article/1671.53187

http://www.nimh.nih.gov/events/autismgrant.cfm

http://www.power2u.org/selfhep/tardive.html

http://www.pni.org/psychopharmacology/abstracts/tardive_dyskinesia.html

http://www.nihs.go.jp/dig/cochrane/jp_9801/revabstr/ab000206.htm

http://www.rarediseases.org/cgi-bin/nord/abstrfly?id=HyAp7gsM&mv_arg=RDB%2d493&mv_pc=1071

http://www.nami.org/helpline/tardys.htm

http://www.schizophrenia.com/newsletter/1097/1097olanz.htm

http://www.sma.org/smj/96oct10.htm

http://www.vh.org/Providers/Conferences/CPS/08.html

http://www.ninds.nih.gov/health_and_medical/disorders/tardive_doc.htm

http://www.umm.edu/psych/

 (studies)

http://www.findarticles.com/cf_dls/m3225/6_60/56959181/p1/article.jhtml

http://psycom.net/tardive_E.html

http://www.kumc.edu/parkinson/td.html

http://www.wemove.org/dys_dmc.html

http://www.cmdg.org/movement_.htm

http://www.osl-ltd.co.uk/dystindex.html  

http://www.breggin.com/neuroleptics.html

http://www.doctorproctor.com/rev/72rev.htm    ????

http://icarus.med.utoronto.ca/Brain%20&%20Behaviour/tardive.htm

http://www.breggin.com/6_7million.html

http://www.psyweb.com/Diction/tardived.html

 

$6.7 million awarded in Risperdal tardive dyskinesia case

http://www.breggin.com/6_7million.html

 

Medical ID Tags  http://www.medicalert.org

 

American Academy of Pain Management   http://wwww.aapainmanagement.org

 

Internet Healthcare Coalition     http://www.ihealthcoalition.org/content/tips.html

 

National Centre for Complementary and Alternative Medicine   http://nccam.nih.gov

 

Tardive dyskinesia   http://www.tardivedystonia.org/whatis.html                                                          http://emedicine.com/neuro/topic362.htm#

http://www.autism.org/tardiv.html

 

Tardive dyskinesia and tardive dystonia: where you can turn for help    

http://www.power2u.org/selfhep/tardive.html

 

Recognizing and treating tardive dyskinesia

http://www.uspharmacist.com/NewLook/DisplayArticle.cfm?item_num=519

 

The Use of Vitamin E to Treat People with Tardive Dyskinesia

http://www.psycom.net/tardive_E.html

 

PICAMILONE        Sometimes also spelt Pikamilon (with or without an e on the end), this is a Russian developed nootropic

http://www.smart-drugs.com/product-info/info-picamilone.htm 

 

Drug-induced & tardive movement disorders

http://www.parkinsons-information-exchange-network-online.com/archive/093.html

 

Dystonia and dyskinesia   http://www.dystonia-support.org/LA-Dystonia and Dyskinesia.htm

 

Secondary dystonia     http://www.dystonia-foundation.org/defined/second.asp

 

Dystonia defined    http://www.dystonia-support.org/

 

Information on drugs that can and do cause dystonia   

http://www.dystonia-support.org/Drug List.htm

http://www.kumc.edu/parkinson/td.html 

 

The treatment of tardive dyskinesias   http://www.acnp.org/G4/GN401000145/CH142.html

 

Serum vitamin B6 in schizophrenic and schizoaffective patients with and without tardive dyskinesia.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=11020126&dopt=Abstract

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=10442256&dopt=Abstract

 

More Dystonia and Tardive Dyskinesia Links:

Tardive Dyskinesia/Dystonia Site Care 4 Dystonia NINDS Fact Sheet on Dystonias Dystonia Medical Research Foundation Douglas Smith tells My Story  Drugs that can cause TD National Empowerment Center On TD TD article Types of Movement Disorders Kelly & Robyn's Dystonia Awareness Page Friends With Dystonia Dystonia Information Brain Research- Dystonia Dystonia Support Group Dystonia Support Bulletin Board MGH Neurology Forum Article on DBS Treatment Dystonia Pages-United Kingdom Paddy Doyle's Site Lisa's Page Cathy's page Tangela's page

 

Williams Syndrome 

http://www.wsf.org/BEHAVIOR/guidelines/parents.htm 

 

Dangers of Air Bags-Chemical Exposure  http://www.airbagsyndrome.com/

 

Great for Cross-Checking Medicines   http://www.drugdigest.org/DD/Home

 

This site explains about TD     http://emedicine.com/neuro/topic362.htm

 

Baylor College of Medicine Movement Disorders Clinic

http://www.bcm.tmc.edu/neurol/index.html

 

Virtual Hospital    http://www.vh.org

 

Breathing trouble from dyskinesias (My friend Jen's site)   http://207.229.131.243/forums/asd/posts/9356.html

 

Dutch Tardive Dyskinesia site by Miranda de Roo  http://home.hetnet.nl/~roo00084/

 

 

Articles on Fish Oils

http://www.mentalhealthconsumers.org/connet/cnn/9801/fishoil.htm

http://www.dyslexic.org.uk/nutrition_factsheet.html 

FISH OIL SUPPLEMENT USED TO TREAT SCHIZOPHRENIA

www.mentalhealthconsumers.org/connet/cnn/9801/fishoil.htm

http://www.gnc.com/health_notes/Supp/Fish_Oil.htm

 

Malabsorption

 

http://www.naspghan.org/sub/Malabsorption.htm 

 

http://www.mayoclinic.com/findinformation/conditioncenters/invoke.cfm?objectid=0B50B26D-34AE-4F43-843BDA653DDEF6E3 

 

Pfeiffer Treatment Centre  - Zinc and other research

http://www.hriptc.org/research_studies.html 

 

Web Resources Complementary Medicine

The Linus Pauling Institute

The mission of the LPI at OSU is to determine the function and role of micronutrients, phytochemicals and microconstituents of food in maintaining human health and preventing and treating disease; and to advance the knowledge in areas which were of interest to Linus Pauling through research and education. The LPI continues the pioneering efforts of Linus Pauling in orthomolecular medicine, an area of medicine devoted to restoring the optimal concentrations and functions of the substances (e.g., vitamins) normally present in the human body. The research at the LPI is aimed at understanding the molecular mechanisms and physiological effects of nutritional factors, and exploring their utilization in health promotion through disease prevention and treatment.

The Way Up

Priscilla Slagle, M.D. is in the private practice of Nutritional /Functional Medicine & Psychiatry in Palm Springs & Encino, California.   She is the author of The Way Up site which contains a great deal of information on nutritional medicine. She has helped thousands overcome the effects of stress, low moods, depression, & a variety of chronic symptoms & diseases and is one of the foremost experts on the prevention & treatment of mental and physical conditions by the use of amino acids. Dr. Slagle evaluates & treats numerous illnesses from a holistic perspective and is the author of "The Way Up From Down," a book on natural treatments for depression.

Health-Heart.Org

This not-for-profit public interest site looks at the food and supplement side of the heart health. Created by Eddy Vos, this site offers a comprehensive archive of medical and nutritional research without any commercial funding and provides the basic orthomolecular information necessary to improve your cardiovascular health.

 

Dr. Cathcart's Homepage

A great many links to orthomolecular papers, sites and other information by a leading practitioner in the field

Medweb: Alternative Medicine

A major internet jump site to complementary and alternative medicine sites.

20/20 technologies health archive

A good collection of complementary medicine related links covering basic nutrition facts, vitamins and aternative cancer therapies

Orthoeurope

News about orthomolecular medicine in the Dutch language, updated every day.

The Rosenthal Center Directory of Databases

The literature on clinical and scientific research into alternative medicine treatments is widely scattered, as is background information on alternative medicine systems and approaches. This database is a compilation of established sources in the USA, Europe and Asia. The listing is hyperlinked to existing Web sites where available, or to brief information on the resource, such as: how to obtain further details; type of literature covered; size of the holding or mode of access.

Health World Online

A large complementary medicine site which includes the Journal of Orthomolecular Medicine's archives as well as other journals, professional organizations, libraries, and bookstores.

Arbor Nutrition Guide

The worlds largest searchable database of internet nutrition resources. Contains journal listings, food and nutrient databases, education resources, alternative medicine information and many other items.

Cyberspace Telemedical Office

A medical site which offers everything from searchable medical libraries to medical yellow pages and physician consultations. A good starting point for health care consumers.

Alternative Medicine Homepage

This page is a jump station for sources of information on alternative, complementary, and integrative therapies for the public.

Reuters Health News

Reuters provides daily breaking news in the health and medical field .

Martindale's Health Science Guide

A "Multimedia Specialized Information Resource" currently containing over 32,500 teaching files; over 40,100 Medical Cases; 531 Multimedia Courses/Textbooks; 764 Multimedia Tutorials; over 1,825 Databases, and over 9,820 Movies. An extensive nutrition section provides a vast amount of information for professionals and laypersons.

http://www.humangivens.com/Contents6.html

http://www.radicalpsychologytv.org/autism.html

 

If you REALLY want to know one of the major causes of autism and some of the other neuropsychiatric diseases, go to Pubmed and enter the search terms 'autism and hypoplasia". In fact you can plug in the search terms for other conditions such as 'hypoplasia and bipolar' 'hypoplasia and schizophrenia' and 'hypoplasia and OCD'.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi

Advocacy

Nutrition, Health and Heart Disease

This not-for-profit public interest page looks at the food and supplement side of the picture and has a great deal of relevant material for those interested in nutrition and its relationship to health and disease.  For those interested in orthomolecular treatments for prevention and treatment of heart disease, this site has much useful information and links.

Canadian Complementary Medical Association

The CCMA is a network of Canadian physicians, osteopaths, residents and medical students with a special interest or expertise in complementary medicine. Their aim is to bring together the best of both conventional and alternative medicine for the benefit of patients. To reach this goal, they encourage education of physicians and public, complementary medical research and support for doctors practising complementary medical therapies.

Internet Mental Health

Internet Mental Health is a free encyclopedia of mental health information designed by a Canadian psychiatrist, Dr. Phillip Long, and programmed by his colleague,Brian Chow. The concept of Internet Mental Health is to use the Internet to freely share the vast amount of information on mental health with the world.

Hoffer's Home Page-The Schizophrenias

Abram Hoffer's Home page provides information on the orthomolecular treatment of schizophrenia, along with several detailed case studies of persons with schizophrenia who recovered using orthomolecular therapy.

Center for Science in the Public Interest

The Center for Science in the Public Interest (CSPI) is a nonprofit education and advocacy organization that focuses on improving the safety and nutritional quality of our food supply and on reducing the carnage caused by alcoholic beverages. CSPI seeks to promote health through educating the public about nutrition and alcohol; it represents citizens' interests before legislative, regulatory, and judicial bodies; and it works to ensure that advances in science are used for the public's good. CSPI is supported by 800,000 member-subscribers to its Nutrition Action Healthletter and through foundation grants and sales of educational materials.

Mental Health Net

MHN is one of the largest, most comprehensive guides to mental health online, featuring over 6,000 individual resources. This site covers information on disorders such as depression, anxiety, panic attacks, chronic fatigue syndrome and substance abuse, to professional resources in psychology, psychiatry and social work, journals and self-help magazines.

Online Complementary Medicine Periodicals

These are a few of the online periodicals that are worthwhile reading to stay current with the latest in complementary therapies and orthomolecular medicine.

The PUFA Newsletter

Townsend Letter for Doctors and Patients

Alternative Medicine Review

Latitudes

Medical herbalism

Thorne Research Abstracts

Nutrition Science News

Vitamin Update

The Nutrition Reporter

 Well Mind Association of Greater Washington, Inc

http://ourworld.compuserve.com/homepages/WMIND/ 

 

Alternative Mental Health

http://www.alternativementalhealth.com/directory/search.asp 

Cognitive Enhancement Research Institute

http://www.ceri.com/referral.htm


Naturopathic Doctors:
http://www.pandamedicine.com/yellowpages.html

American Academy of Environmental Medicine:
http://www.aaem.com

Vitamin Therapy for Psychosis by Abram Hoffer, M.D., Ph.D. has this to say about brain damage.

http://doctoryourself.com/hoffer_psychosis.html
"Tranquillisers cause brain damage

http://www.bipolarchild.com/newsletters/0108.html

"Neuroleptics and Discontinuation Syndrome" by David Oaks).
http://www.namiscc.org/newsletters/Sept01/discontinuation.htm

"Rabbit Syndrome Secondary to Risperidone" by Jenifer S. Hoy, Bruce Alexander, Pharm.D.

http://www.namiscc.org/Research/2002/RabbitSyndrome.htm

Cabrillo College Health Services - Student Health Center information.

Camphill Communities California - residential care community in Soquel, for adults with developmental disabilities sponsored by the San Andreas Regional Center.

Cognitive Therapy Center - Located in Oakland & S.F. treats OCD and related disorders.

Mental Health Client Action Network  - Includes schedule, internet search hints & many SC Mental Health phone numbers. 

Santa Cruz Interfaith Compeer - Provides friends and companions for Mental Health Clients.

Santa Cruz Volunteer Center - Provides volunteer opportunities. 

UCSC Counseling and Psychological Services -UCSC Student information.

 

Mental Health Internet Search Guides

Guide to the Mental Health Internet - is organized by types of resources rather than reviews of whole sites.

Open Directory Project (DMOZ) - provides a directory of links to good resources on the internet.

 American Iatrogenic Association - devoted to the study and reporting of illness caused by the medical profession, especially by physicians. Despite the rare public discussion of iatrogenic illness, it is a significant cause of disease and death for Americans.

American Orthopsychiatric Association - a 78-year old multidisciplinary membership association which focuses on clinical issues and social justice issues within the mental health care professions.

Bazelon Center for Mental Health Law - Provides legal advocacy for the civil rights and human dignity of people with mental disability.  This group is the most active advocacy group watching legislation affecting mental health system consumers.

California Institute for Mental Health  - Promotes quality mental health services through training, technical assistance, research and policy development.

California Network of Mental Health Clients - CNMHC is dedicated to empowering clients of the mental health system through self-help groups and networking statewide.

Electro Convulsive - site dedicated to advocating against electro shock treatments. 

Fair Access Coalition on Testing - FACT's mission is to protect fair access to psychological and educational tests by properly trained professionals to better serve the public.

FightForKids.com - educational resource for parents concerning the widespread practice of labeling children mentally ill and drugging them with heavy, mind-altering, psychiatric drugs.  

International Center for the Study of Psychiatry and Psychology - founded by Peter R. Breggin, M.D., author of Toxic Psychiatry.  For nearly three decades ICSPP has been informing the professions, media and the public about the potential dangers of drugs, electroshock, psychosurgery, involuntary treatment, and the biological theories of psychiatry.

 

Compiled by: -

Jim Mackie     jimmymackie@hotmail.com